This site gives general information, not medical advice. For questions about your own health, talk to your doctor or IBD team. If you feel very unwell, see when to get urgent help.
Who runs this site
IBD Resources Hub is run by an independent health consumer. The author is an engineer and IT professional, and has volunteered with several inflammatory bowel disease (IBD) charities in the past. The site is not part of any charity, health service, professional body or company.
Funding and independence
The site is self-funded by its author. It carries no advertising or sponsorship, and no organisation pays to be listed. The author is a member of several IBD charities, some of them listed on this site, and has volunteered with some of them in the past, but has no current volunteer or other role with any organisation listed here.
The author has no current links with any pharmaceutical company. Until 2023, the author was a board member of a registered IBD charity, which closed that year, and in that role dealt with and accepted grants from pharmaceutical companies on its behalf. The charity and the companies both disclosed those grants at the time, under the Medicines Australia Code of Conduct.
Being listed is not an endorsement. It means the organisation may be useful to people living with Crohn’s disease or ulcerative colitis, or to the people who support them.
How organisations are chosen
- Patient organisations and support groups come first on each country page: national charities, helplines, peer support, and stoma and pouch support.
- Charities are checked against the official registers. Every organisation the site describes as a charity is checked against its country’s charity register (the ACNC in Australia, Charities Services in New Zealand, the Charity Commission for England and Wales, the Canada Revenue Agency and the US Internal Revenue Service) every month. Some UK charities are also registered in Scotland with the Scottish Charity Regulator (OSCR); the site checks them with the Charity Commission. An organisation that is no longer registered, or whose website we find has stopped working, is taken off the site until that is sorted out.
- Professional bodies and research institutes are listed for completeness, in folded sections, because they mainly serve doctors and researchers.
- Online communities are peer support. Members share their own experiences, and what they post isn’t medical advice.
Some charities listed here receive funding from pharmaceutical companies, as many patient organisations do. The charities publish it in their annual reports, or the companies publish it in their own disclosure reports. In Australia, Medicines Australia publishes the companies’ reports on their support for patient organisations. Funding like this makes no difference to whether an organisation is listed on this site.
Where the health information comes from
The health information on this site, mainly on the What is IBD? page, is drawn from national health services and patient charities, such as the NHS and Crohn’s & Colitis UK. Specific facts, such as figures, medicine advice and when to get help, have a numbered reference so you can check them, and medical journal papers are cited only for those.
This information has not been reviewed by a clinician. It is general information to help you understand IBD and prepare for conversations with your doctor or IBD team, and it can’t take your own circumstances into account.
Financial figures
Some organisation cards show a financial transparency figure, such as the share of spending that goes on charitable activities. Each one comes from the organisation’s published accounts or its regulator’s records, with the year and a link to the source.
A figure like this shows where money goes, not how much good an organisation does. Running costs vary with an organisation’s size and the kind of work it does, so read the figure alongside what the organisation actually offers.
Keeping it up to date
The bottom of each content page shows when it was last updated. The health information is looked over at least once a year. The details most likely to change are checked more often: phone numbers, opening hours and medicine charges are checked against their official sources every month, and so are charity registrations. Links within this site are checked automatically every time it changes. Links to other websites are checked automatically every month, and sites that block automated checks are checked by hand. If you still find a link that is broken or out of date, please let us know.
Privacy
This site doesn’t use cookies, analytics or advertising trackers, and it doesn’t load anything from other companies’ servers while you browse. When you open the home page, the hosting service may take you to your country’s page, based on the country your internet connection appears to come from. The site doesn’t keep a record of this. If you use the light and dark switch, or pause the changing word in the header, the site remembers that choice in your browser’s own storage, on your device only. As with any website, the hosting service keeps standard server logs.
The suggestion form linked below is a Google Form, so Google’s privacy policy applies to anything you enter there. What you send through the form goes only to the site’s author, and is used only to deal with your suggestion or request. Google, which provides the form, stores your answers, possibly in another country.
Suggest a change
Use the Submit Content form to suggest an organisation or request a change, such as a correction, a broken link, or anything that’s wrong or out of date.