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IBD and Crohn’s & Colitis Resources for the United States

IBD affects close to 1 in 100 Americans: an estimated 2.4 million people, including over 100,000 children and adolescents.

  • 1 in 100 Americans affected
  • 2.4M people living with IBD
  • 100k+ children & adolescents

IBD in the United States

IBD affects close to 1 in 100 Americans. A CDC-funded study led by the Crohn’s & Colitis Foundation (the INPUT study) found IBD diagnosed in more than 0.7% of the US population (about 721 per 100,000 people), corresponding to an estimated 2.4 million Americans, including over 100,000 children and adolescents.

National Organizations

Crohn's & Colitis Foundation

National organization with local chapters across the US Based in New York, United States

  • Charity
  • Patient Advocacy
  • Health Consumer Organisation
  • Support Programs
  • Educational Resources
  • Research Funding
Over 80 cents of every dollar goes to research, education, and patient support services
The Crohn’s & Colitis Foundation is a non-profit, founded in 1967, that funds research toward cures for Crohn’s disease and ulcerative colitis and helps children and adults live better with them. It has invested more than $500 million in research, and runs education programs and support services for patients and the professionals who treat them. Learn more about the Foundation
Learn more about Crohn's & Colitis Foundation

American Gastroenterological Association (AGA)

National professional organization for gastroenterologists Based in Bethesda, United States

  • Health Professional Body
  • Medical Research Organisation
  • Clinical Guidelines
  • Patient Resources
  • Research Programs
The American Gastroenterological Association (AGA) brings together the professionals who research and practice gastroenterology in the US and beyond. Founded in 1897, it now has more than 16,000 members worldwide. Its AGA Institute runs the association’s research, practice, and education programs and publishes the journals Gastroenterology and Clinical Gastroenterology and Hepatology. Learn more about AGA
Learn more about American Gastroenterological Association (AGA)

IBD Support Foundation

National support network for IBD patients Based in United States

  • Charity
  • Patient Advocacy
  • Support Network
  • Patient Support
  • Educational Resources
  • Telemedicine
The IBD Support Foundation is a 501(c)(3) non-profit based in Los Angeles, focused on quality of life for people with inflammatory bowel disease. It offers psychosocial support, education for both patients and providers, and research, and runs programs including a telemedicine center and the Gut Matters podcast. Learn more about IBDSF
Learn more about IBD Support Foundation

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Federal research agency Based in United States

  • Government Body
  • Medical Research Organisation
  • Research Funding
  • Educational Resources
  • Clinical Trials
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the US National Institutes of Health (NIH), conducts and supports research on many of the most common, costly, and chronic conditions, including inflammatory bowel disease. It provides evidence-based health information, funds research, and supports clinical trials related to Crohn’s disease and ulcerative colitis. Learn more about NIDDK’s IBD research
Learn more about National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

North American Shared Resources

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

Professional organization serving US, Canada, and Mexico Based in North America

  • Health Professional Body
  • Medical Research Organisation
  • Clinical Guidelines
  • Educational Resources
  • Research Programs
NASPGHAN (the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition) works to improve care for infants, children, and adolescents with digestive disorders, including IBD. It develops clinical practice guidelines, supports research, and produces educational resources for the healthcare professionals and families looking after children across North America.
Learn more about North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

Online Communities

Crohn's & Colitis Foundation: Community & Support

Official patient community and peer support from the US national charity Based in United States

  • Patient Support Group
  • Health Consumer Organisation
  • Peer Support
  • Support Group Finder
The Crohn’s & Colitis Foundation connects patients, families, and caregivers through local and online support groups and its Power of Two program, which pairs people who are newly diagnosed or facing treatment decisions with trained volunteers who live with IBD for one-on-one peer mentoring.
Learn more about Crohn's & Colitis Foundation: Community & Support